Frequently Asked Questions

 

We've tried to answer the most frequently asked questions we receive by email.  If you have any further questions, please contact us, or search our website.

 

The Most Frequently Asked Question

 

How can I add my lupus blog or website here?

 

There's a few simple steps to follow.  Your website, organization or blog must be genuinely lupus related and up-to-date.  You must also link to us, using the following wording, or similar, and placed on a prominent page: 

 

The Lupus Magazine - Your free online Lupus Magazine

- For those with lupus, by those with lupus.

 

We often check for incompatible links and will delete those that don't meet our requirements.  That said, we're more than happy to promote lupus organisations and would like to let as many people know about great people doing great things for lupus!

 

Your listing will 'fall' into a few different categories.  We generally promote the most professional, official and classy looking sites and blogs with great information on our featured website pages - 'hot lupus websites' and 'hot lupus blogs and pages'

 

Due to demand and the submissions received, we can't place all the sites here.  However, we will list sites on our general links page too.  Generally, the more original and professional looking sites will be featured.

 

We also tend to shy away from lupus websites with online stores, those run as a business, or those that are not related to a certain charity or organisation.  Blogs will fall into the same category as websites.  If you're promoting a cure, a certain medication or an unproven treatment, don't read any further.  Likewise, if you're out to make cash at the expense of those suffering from lupus, toodles! 

 

To submit your site or blog for consideration, email us lupusnews@live.com.au with 'lupus blog or site' in the subject line. 

 

In your email, please provide us a link to your blog or site and also a link to the page where you've placed our link.

 

We will also require a logo or photo to promote your blog on this site. 

 

Photo's must preferably be a 'headshot' only and of good quality.  Take a look around the site or see our writer's page to get an idea of what we require.  Logos must be your 'property' and not the copyrighted work of others.  A short description of your site will also help to attract readers to your site.

 

For those with blogs previously listed here and who would like their details or blogs updated, please feel free to contact us.  Likewise, we can answer any questions you may have via email.

 

 

My lupus organization is having a walk for lupus.  Can I promote it on your website?

 

Sure...  we love to hear about lupus fundraising and awareness activities.  Generally we list walks and awareness activities on the 'Your News & Events' page.  If your fundraising event is really original, we may cover it on one of our news or magazine pages.

 

  

How can I write for your website?

 

One of the major reasons this website was established was to assist  lupus patients to become published writers and build a résumé or CV.  As the website has evolved, we made the decision to link directly to those who write lupus related articles, thus keeping everything up-to-date and live.  So generally, we don't accept articles unless they are ground-breaking, amazing or of an interview format. 

 

However, if you are a writer and would like us to link to your writing, see our submission guidelines above so we can lead readers to your wonderful words, blog or website. 

 

Who 'owns' my photo or article once you publish it?

 

While we now direct readers to your blog or website, if we do publish an article you submit, you own the copyright!  It's your hard work and we can relate to that.  We might have to edit your articles and expect a credit if your work is then reproduced, but basically you retain the rights to your work.  As creative people and fellow writers, we understand how copyright is so important to the creator of certain material.  All we ask is credit is given to us if your work is subsequently published elsewhere.  We can't guarantee photographs you submit to us won't be 'copied' from this website.  However, if it's your original image, you  'own' the copyright to that image and we will credit copyright owners of all material. 

 

We have a lupus walk, event  or fundraiser planned - when do you want to know about it?

 

As soon as possible!  Even if your lupus event is six months away, let us know about it.   Forgive us if you leave it a little late and we can't  publicize your walk this weekend - by the time we read your email, you'll have crossed the finish line - well done!

 

What news do you consider for submission?

 

We accept a variety of lupus related news.  Anything including fundraisers, awareness activities, lupus research details, medical info, book launches  and all things in between.  We are reluctant to report unproven lupus treatments and drugs.  We like to work together with everyone in the lupus community as one - rather than getting all political.  So if it's newsworthy to the lupus community, just let us know about it anytime!

     

Do you accept press releases?

 

Maybe...  all press releases are reviewed before publication and are generally published exactly as written and received.  Press releases are often noted as such upon publication - this keeps everything transparent.

   

 

How can we promote our lupus organization on your website?

 

Easy...  send us an email, tell us about your organization and we'll ad your contact details if you're a genuine lupus organization.

 

How can I contact your writers?

 

An initial request should be made via this website.  Some of our writers provide their contact details on their profile pages.  However, due to the amount of requests and dodgy emails they often receive, they generally take more notice of emails we forward on your behalf. 

 

Why the Australian contact details?

 

Simple... the guy who designed and established this website is based in Australia when not trying to raise lupus awareness in America and worldwide.  This is definitely a worldwide lupus site, irrespective of religious and racial beliefs.  Our writers are based in various countries.  We hope to have American contact details available soon.

 

    

Is this 'magazine' the same as Lupus Now?

 

No it isn't...  We're not affiliated with The Lupus Foundation of America and their publication/s.

 

Are your writers available for media interviews?

 

Depending on the circumstances, generally yes...  but sometimes they may not be feeling well.  Considering our writers have a form of lupus, we're sure you'd understand.  Send us an email detailing your request and we'll put you in touch with them.

 

Do you offer medical advice?

 

Definitely not!  We may relay lupus news, but we take no responsibility for the content of articles and we don't offer medical advice.  You should seek such advice from a qualified health care professional.

   

Are you a lupus organization?

 

No, but we're friends of many.  This website is an independent, 100%  voluntary effort.  Our editor, writers and the webmaster are not paid for their efforts.  The initial aim of of this site was to make it an avenue for lupus writers to become published writers.  Just as importantly, this site was established to publicize lupus events and organizations worldwide.  We have tried to keep this website independent and ad-free and any subsequent minimal advertising covers the costs of this operation including international telephone calls and related website communication costs etc.  

 

Can I send photos and details of our recent lupus event?

 

Sure!  Lets us know all about it.

 

How often is this website published or updated?

 

The Lupus Magazine is published monthly, however we try to update important news and events whenever we get the chance.  As noted above, this website is a voluntary effort.  We all have a form of lupus and we do get sick at times.  Some of us work full-time and 'juggle' our daily duties before contributing here.  However, we try to keep this site as fresh as possible.  If we're a few days late now and then, we know you'll understand the circumstances.

 

Where can I find archived or old articles?

 

We've set up our own blog that will contain all articles by our writers.  The Lupus Magazine blog archive can be found here.  Generally we load articles to the blog towards the end of the month and prior to our new edition.  If you are searching for an article by an individual writer, check their writer's page and a link to all their previous articles can be found beneath their profile.

 

 

Can I copy articles or photos from your website?

 

Sorry...  Articles, photos and logos remain the property of the copyright owner who put in all the hard work in the first place.  You must always ask permission to copy or distribute other people's property.  You cannot copy articles posted here from other sources without contacting them directly.  Original photographs on this website have been posted with pic-track technology so there's no use copying them without permission - we have a good idea where they end up. 

 

Any exceptions?

 

If you're a genuine lupus organization or using the articles/photos for school or study projects, the answer is usually yes.  In other cases, maybe... 

 

A request to republish is often accepted from our writers and certain lupus organizations who forward us their news.  However there may be conditions such as noting the copyright holder of an article or photo, or crediting The Lupus Magazine if you use any of our writer's articles.  If you'd like to use any of our writer's articles for your lupus website, please play it safe and ask us first - This will save you a lot of time and effort and once again, the answer is usually yes!