The
Story Behind The Lupus Magazine - Meet our Writers
Meet the people who made The Lupus Magazine
possible:
Annessa
Annessa is a college professor
by day and a freelance writer by
night. Her PhD is in American
History, but she’s morphed from
US History to US-Turkish
relations. Annessa was
diagnosed with Lupus in 1992,
ironically soccer practice was
interrupted for the news. In
what feels like a million years
ago, she was told that her body
would fail her by her 20s.
She’s now in her mid 30s, lived
with Lupus half her life, and
she still baffles those around
her with her willingness to
hustle the academic world,
fiction world, and the world of
Lupus...
Living in Upsate NewYork for
most of her life, Penelope's always
been touched by art in all its
many different forms. Whether
it's tattooing a client, drawing
iconic comic book characters,
painting digitally on her
laptop, or just sketching on the
porch enjoying the air, she
tries to live everyday to its
fullest...
Diagnosed with SLE at 8
years old and having moved
around a lot as a military brat
(currently living in Germany), I
like to think I’ve learned a
thing or two. I am here to try
and provide a voice for all the
younger people struggling with
an autoimmune disease like lupus
as the Editor of The Lupus
Magazine's new teen page - Teen
Lupus - The Prose and Cons...
I am a Lupus Warrior who is
fighting this fight with all of
my might! I believe the only
way to this “Lupus life” is to
be positive. Lupus may try to
take control of our body but it
is up to us to take control of
our mind...
Nací en
Viña del Mar, Chile en el 79. Me
he criado España que es donde
actualmente resido.
El lupus llegó a
mi vida inesperadamente cuando
sólo contaba con 13 añitos. Los
principios fueron difíciles,
pero el gran apoyo familiar y mi
propio optimismo me ayudaron a
superar cada bache y ser quien
ahora soy...
Annie Taylor lives in Brisbane, Australia, and is a wife, mother of two, and the sister of a person with Lupus. She works part time as a Safety Officer and is passionate about Lupus Awareness. Her quest for awareness was initially to assist her sister, but Annie ALSO has Lupus...
Life throws
us curve balls and Lupus is certainly a big one. I’m
a mom, photographer and ASCAP songwriter. I express
myself through words and music. After many years of
illness and finally being diagnosed with Lupus, I
wrote and recorded a Lupus benefit song, “Fly Free
Butterfly Fly Free,” where all of the proceeds go to
the Lupus Foundation New England...
Debra’s
educational background is in child development. She
was employed for many years as a nursery school
teacher both The United States and abroad where she
worked with children of many developmental levels.
Today she owns Acorn School of Art which is located
north of Boston and teaches children through adult
fine art painting...
Born and
raised in Nashua, New Hampshire.
I studied Communications for a
short while, until life happened
and I ventured off into a
different direction entirely...
Born and raised in San
Sebastian, Puerto Rico, I'm
looking to raise lupus
awareness. I'm now based in
Georgetown, DE. and I'm the
Spanish language editor at The
Lupus Magazine...
Lupus awareness is obviously
extremely important to me. It
can be a very devastating
disease yet most people have no
idea what it is outside of a
catchphrase on a popular
television program...
I find joy in the simple things
in life: a silent moment...a
cherished memory... a
smile...the sunrise...the
sunset... a star filled
sky...family...friends....
Julie has a Bachelor's and Master's degree in
Social work which she received at Grand Valley State
University in Allendale, Michigan. She also has a
minor in Psychology. Julie currently resides in
Western Michigan with her husband and seven-year-old
son...
I'm a patient advocate that
networks with other Lupus
patient advocates with the
commonality of raising public
awareness and most importantly,
to inspire, educate and empower
other patients. Though Lupus
knows no limits, the spirit of
advocacy reaches hearts and
changes the lives of people. I
suspect that when we reach out
to another
fellow sufferer the
universe must feel it...
I’m Patty Gaetz from Minnesota.
I was diagnosed with lupus (SLE)
March 4, 2010 at the age of 42.
I have been round and round with
symptoms and doctors and
specialists for the past two
years ...
Ro Molina is a NYC-based writer, designer and
general Jane-of-all-trades. Diagnosed with lupus in
2000, her struggle with the condition has inspired
her to enjoy every day to it's fullest and help
others like her do the same. She shares her
adventures in living through her blog...
Geoff was born and raised in Sydney, Australia a
'few' years ago now. His passion for travel has
taken him to numerous countries including Russia,
Japan, Canada and extensive visits to the United
States. Other regions visited have included The
South Pacific, Great Britain and many European
countries...
April 2010 -
On April Fool's Day, the very first edition of The Lupus
Magazine goes online featuring Seal on the homepage.
The first writers are Geoff Thomas, Kim Nault & Julie
Miller. Gail Falconer features
telling her lupus story. The editor suddenly
realises what he's got himself into!
May 2010 -
Lorie Streeter is interviewed by Geoff and her song
"Wherever you Float" is featured. The response was
hugely popular and totally unexpected. World Lupus
Day is the central theme of the articles. We have
Leen, a young lady from Syria, discussing her lupus
journey. The magazine caters for a global readership.
The Lupus Magazine launches its own You Tube channel -
Lupus News
June 2010 -
Soprano Jenny Myers tells of her relief to finally
publicize her lupus. Our readership includes those
from 6,200 different world cities within in a
few months and with the only publicity being via facebook
and word of mouth. Sheira (aka Johnny Trash) joins
our writing team to give a cheeky perspective of lupus
from the UK. It's APS awareness month.
Marcia Urbin Raymond writes about her documentary
trilogy, Stories of Lupus, For Life & Living through
Dying.
July 2010 -
Miss USA runner-up Morgan Woolard is featured in a world
exclusive interview as she discusses her lupus and the
politics of pageantry. Woolard also exclusively
retracts a previous statement regarding being cured of
lupus. Tiffany Marie Peterson joins the team and
Kim Nault discusses Tyler Malcolm's remarkable lupus
theory. We also
begin promoting Love Simple, a movie with a lupus
theme set in Brooklyn. "Wherever you Float" gets
1000 hits on our You Tube channel.
August 2010 -
Love Simple's Patrizia Hernandez launches our new
Spanish Language pages and Nancy Arocho is our editor.
After merely five months, we're bilingual to an extent.
We also launch our first competition in association with
the producers of the movie. Patty Gaetz, who was
profiled in our July issue, writes for us and our
friendly team of writers all make their deadlines -
just! Videos on our Youtube channel continue to
attract attention - especially Larry Lupus - a foreign
guy who does stunts to raise awareness. We also
feature our own press room and offer to send out free
press releases for those who submit lupus info to TLM.
Kimberly Lehanka joins our writing team and is an
instant hit with readers.
September 2010
- We welcome Jules Sherred to The Lupus Magazine and
feature a special three chapter lupus essay by Debra
Highberger. Ro Molina also joins the team and
despite almost all of our writers being ill, we file the
last article hours before going online. It was a
draining month for all involved, but we were inspired by
our new young sister from Jamaica, Shoyea-Gaye Grant.
For those who meet around the virtual TLM water cooler,
Shoy keeps the conversation going for a full month!
October 2010
- Tiffany-Marie interviews Shante Broadus, the wife of
Snoop Dogg, for our feature article. Shante's
daughter suffers from lupus. Kimberly reports from
the LFA's Butterfly Gala event in New York City and Kim
Nault submits yet another great piece of writing
assisting those yet diagnosed with lupus. Johnny
recollects her brain fig - or is that fog? - episodes
and we welcome Maria Pfeifer to the team. Once
again, we publish more articles in Spanish and
translated by Nancy and an article by our youngest
writer, Shoyea-Gaye from Jamaica, is one of the most
'liked' articles of all time on our facebook page.
Jules and Ro once again contribute great content and we
relate the lupus story of Kathy Patterson, Founder of
Lupus MCTD Foundation, on our Meet Someone With Lupus
page.
November 2010
- Our November issue was a Love Simple love-fest.
Celebrating the worldwide DVD release of the little film
with the big heart, Kimberly interviewed actress
Patrizia Hernandez, Jules Sherred conducted a
radio interview with producer John Casey & Geoff
interviewed the director and writer of Love Simple,
Mark von Sternberg. and Tiffany reviewed the film.
Julie wrote about walking for lupus, Ro discussed
finding Dr. Right, Kim and Patty penned lovely articles
regarding loved ones and lupus, Shoyea-Gayle suggested
year-round lupus awareness and Johnny wrote about being
in hospital with lupus, ironically from hospital!
We also met the lovely Sharon Harris, Public
Relations Director Lupus Alliance of America Michigan
Indiana Affiliate - who shared her lupus journey with
us.
December 2010
- Our December issue featured two new writers, Amy
Cate Keefe and Sharon Harris who supplied two great
articles - one featuring Chris Wilcox from the Detroit
Pistons. We covered the Lupus Research Institute
NY's brilliant effort in illuminating the Empire State
Building for lupus awareness. Kristel shared her
lupus story with us and Maria Pfeifer wrote about
anthropology and lupus. Our regular contributors,
Kimberly, Nancy, Jules, Julie, Patty, Johnny & Ro wrote
about the things that mattered most to them as usual and
Shoyea-Gaye received fan mail due to her wonderful
article titled, 'Tears of a Butterfly.' All at The
Lupus Mag were thinking of Kim Nault, who for the first
time since going online, was unable to write for us due
to illness - but we knew she'd be back bigger and better
than ever.
January 2011
- In the January edition of The Lupus Magazine we
opened the new year featuring yet another talented
person affected by lupus. Geoff Thomas
discovered a remarkable lupus advocate, Elisa Lynee, and
we learnt of the musical, and often frustrating lupus
journey, of the girl behind the benefit song, “Fly Free
Butterfly Fly Free” Our growing list of
writers was extended to include Debra Highberger,
who we featured back in September 2010, and also young
Maddie Pearce from Washington State, who featured on our
'meet someone with lupus' page. The January
edition also marked our biggest 'Spanish' edition too -
Nancy translated articles by Shoyea-Gaye, Julie Miller,
Geoff Thomas and of course her own piece, as
'La Revista de Lupus' continued to
grow.
February 2011
- With a growing number of writers we featured a record
number of articles in the February edition of TLM.
Leading the way was young Maddie Pearce and her
wonderful interview with Salimah Mussani, a golfer who
hasn't allowed lupus to get in the way of her dreams on
and off the golf course - even Tiger Woods made an
appearance! It was also lovely to have Elisa Lynee
and Kristel Goodspeed-Correa join the writing family.
Elisa featured in our January issue and subsequently
offered to write a regular column titled 'Butterfly
Blessings'... We also welcomed back Kim Nault
after a difficult time with lupus and MS and it was
lovely to have Tiffany Marie Peterson contribute for the
first time in 2011, along with all the regular girls who
make The Lupus Magazine what it is - an independent
voice for those with lupus, by those with lupus.
March 2011
- The story of three young English ladies and their Beat
the Butterfly lupus awareness campaign lead the way in
out March edition. We welcomed Lori Kirk to our
family of writers and Lori was also featured on our Meet
Someone With Lupus page. The sometimes
controversial Johnny Trash relayed the events of her
first hospital visit of the year and Elisa Lynee
continued her column, Butterfly Blessings. Kristel
reported on an ad council billboard campaign that has
spread due to online interaction while Maddie Pearce
wrote an excellent article for those with lupus and
attending college. We also welcomed Donna Oram
from the Lupus Alliance of America as a guest writer and
contributions continued from all your favourite regular
writers as we approach our first birthday online.
April 2011 -
The April edition was a bit of a TLM lovefest as we
celebrated our first year online. The editor wrote
about how the magazine evolved and highlighted the year
thus far and many of our writers spoke of what it has
meant to be part of the magazine. We even released
two videos courtesy of Nancy and Elisa showing the faces
of lupus, or more appropriately, the faces of the
writers involved: see our
Youtube Channel.
However one of the most important things we introduced
was a page specifically for teens with lupus edited by
the talented sixteen year-old Hannah Tubbs: "Teen Lupus
- The Prose and Cons"
May 2011 -
The May edition of The Lupus Magazine had a family vibe
as we recognised the often forgotten ones who deal with
the affects of lupus. Kimberly Lehanka interviewed
her parents and we learned how being a caretaker affects
those around us. Maddie Pearce wrote about the love of a
brother and Nelly Chester detailed some wonderful kids
who raised awareness and funds for lupus. Our teen
editor Hannah, introduced a new column titled 'exPEERiences'
for those younger ones to share their lupus story with
other teens. Daniela Ayala joined us as a writer
for our Spanish pages, La Revista de Lupus while our
regular writers to make contributions included, Tiff,
Johnny, Debra, Elisa, Julie, Maria, Jules, Ro, Kristel &
Shoy. Annie Taylor from Brisbane, Australia,
also joined our writers on a regular basis.
June & July 2011
- In this double issue of The Lupus Mag we featured the
wonderful efforts of Kimberly Dansby and The Purple Rose
Foundation. This Californian based organisation
was formed to raise funds and assist those with lupus to
attend college and complete their education. Along
with all our regular feature writers, we highlighted the
efforts of those holding lupus events worldwide,
including The Lupus Association Queensland (Australia)
and their high tea event. This function was
attended by our writer Debra, who flew all the way from Boston to
be part of it. We also took the time to reflect on
the future of the magazine and how we should advance our
theme of global lupus awareness - therefore, a new
format was agreed upon and we were excited in our
approach to make the magazine a one-stop global lupus
directory commencing August 2011.
August 2011 -
The Lupus Mag is re- launched! Editor Geoff Thomas
explains... "Over the past few years it has been an
absolute pleasure to bring you informative news from the
lupus world and also highlighting the fine art and
writing of some very talented contributors. Publishing
the magazine monthly has been a huge task for all
involved, considering it's 100% voluntary and we all
have a form of lupus. And as all things evolve, we've
decided to make a few changes to the format of The Lupus
Magazine.